This is my first ever blog, to reach out to patients and parents and every one who lives or knows anyone with congenital heart diseases, a very small effort for record, to put in place for people to learn, to savor life and believing in God Almighty.
I was blessed with my 1st (first) baby doll on 11th of January 2011 at approx 1 PM (according to birth certificate) Goes like (11/1/11 1 PM my first baby), God thanks for the gift. while we relished our moments together we enjoyed her presence from the day she was born, but after 12 days of her in this world we realized something was not rite, took her to a pediatrician and got her checked, there and then he heard heart murmurs which he heard quite rightly, from then onwards hers and our life changed, she was admitted in hospital for initial chkups.
From that day onwards she had multiple admissions in Peads CHD department of our local hospital she was diagnosed with Hypo plastic right heart (HRHS) we met quite experienced Surgeons and cardiologists who gave us all the confidence in the world for treatment, she was early diagnosed and the team sat together for analysis and finally reached to conclusion that she will be going through 3 major invasive surgeries (initially PA band at 2 Months, Bidirectional Glenn @ 1 year 1 month combined with angio, and Fontan later if needed for a staged remodel of her heart.
Today she is recovering after her 2nd major heart surgery that is Bidirectional Glenn procedure done on 30/1/2012 and is now 1 year 3 weeks and 3 days old and still going strong, every thing happens for a reason and her heart condition had a reason, I started a log book in which all the stuff and the reasons for her condition was jotted down i had more than 20 reasons why CHD happens and concluded that only one question that (did an antibiotic caused this mishap?) remained unanswered till today.
I pray while she recovers and ask any one and every one to pray for her long life and her well being after all to save a life is as to save the whole humanity. Prayers will save her and all the support will be paid hereafter.
May God bless us all...
thats all... till her next visit
Dad Mateen and mum Maryam signing off...
4/2/2012
She is recovering well in Ward and Docs + Nurses are confident to discharge her on Tuesday if all goes well.. she and her Mum have already gone thru a lot... hope she will be better than ever....
I personally believe she will have a stronger heart, due to normal left ventricle, as most of the pumping and hard work is done by the left ventricle so she has chances to go all the way till Fontan procedure.
Today i observed an elevated blue tint in her toes and finger tips, they say it will go away soon after she is off medications and is discharged...
hope that happens
11/2/2012
She is discharged and back home with health better than ever... YIPEEE... but stitches on.... yes after one week her bluish tint has gone pretty much away from foot and finger nails... means good blood oxygen saturation :)))))))... she has started to make cuddly noises started to stand up and now in a normal state... her pale color has gone away that was due to stay at the hospital she has recovered well from her BDG and cardios plus surgeons are confident for her to live a normal life till fontan is performed. she has shown good signs and symptoms
the only problem she has is that she cannot sneeze properly docs say its because of the pressure that she has due to stitches when those will go away she will again sneeze properly.
